For families facing the unimaginable prospect of losing a child, getting the right support can make an enormous difference to them being able to cope. At the toughest time of their lives, Helen & Douglas House provides a warm and friendly home from home for the whole family. We offer a place where they can have the time and space to be together, knowing that their child’s medical needs are fully supported at all times.
At our two purpose-built hospices, we provide 24-hour in-house care for babies, children, teenagers and young adults. Based in Oxford, we’re here for families across Oxfordshire and the surrounding counties as far away as London.
We offer emotional, practical and medical support to our patients and their parents, partners, brothers, sisters and other family members. We’re here for them from their first stay at Helen & Douglas House right through to bereavement support. We continually review our services to make sure we’re always providing the best possible care for the patients and families who come to us.
Who can be referred to Helen & Douglas House?
We’re here to help terminally ill children and young adults. Referrals can come from anywhere, but are typically directly from families or from health and social care professionals such as consultants, GPs, hospital and community nurses, schools and voluntary workers. Young adults aged 16 to 35 can refer themselves to Douglas House.
Do you have a child or are you a young adult needing support?
We may be able to support you and your family. Find out more about the referral process or call Helen & Douglas House on 01865 794749 and speak to our Referral Team.
Elysia lives near Wendover, Aylesbury with her parents Vanessa and David and her older sister, Madeleine. She has a complex condition, and is now on renal dialysis at home after a failed renal transplant. She has been visiting Douglas House since June 2013. She explains:
“The medical care is not really very different to the care I receive at home, although instead of my mum dialysing me, I have to go into the Tarver Dialysis Unit at the Churchill Hospital in Oxford. I’m lucky though because a nurse from Douglas House goes with me and stays with me during the dialysis, which makes me feel safe.
If I go into the adult hospital I don’t get the help I need with showering and looking after myself and they ask me questions I don’t understand. My mum has to make up my special feeds at home and take it into the hospital. None of this happens at Douglas House. I get all the help I need and my mum is confident that all my feeds and medicines are given to me correctly. I’m not worried about having a seizure at Douglas House as there is always someone close by and they have a listening system in the rooms.”