Coproducing a library of videos to support families caring for children with gastrostomies: A mixed-methods evaluation with family carers and clinicians.

Many families now perform specialist medical procedures at home. Families need appropriate training and support to do this. Similar coproduced educational materials are needed to support families who perform other medical procedures at home.

Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice.

Assessing pain in infants, children and young people with life-limiting conditions remains a challenge due to diverse patient conditions, types of pain and often a reduced ability or inability of patients to communicate verbally. The aim of this review was to...

The challenges of caring for children who require complex medical care at home: ‘The go between for everyone is the parent and as the parent that’s an awful lot of responsibility’.

Increasing numbers of children with complex health-care needs are cared for at home by their family. The aim of this qualitative study was to explore the challenges experienced by families caring for children who need complex medical care at home.

Training and support for caring for a child’s gastrostomy: a survey with family carers.

The aim of this study was to explore family carers’ experiences of training and ongoing support for caring for their child’s gastrostomy, and to get their views on how this could be improved.

Managing and sharing research data in children’s palliative care: Risks, benefits and imponderables.

Joint research with Together for Short Lives and Association of Paediatric Palliative Medicine into the managing and sharing of research data in children’s palliative care.