Since 1982, we have been helping local families to make the most of every day they have together.
Each family has a different story to tell about their experience of looking after a terminally ill child and the support we offer them at the hospice and through our outreach service. Find out how Helen & Douglas House makes this desperately difficult time just a little easier in the articles below.
The story of Helen & Douglas House hospice is the story of our patients
Meet Lily-Mae and her family
Lily-Mae, from Witney, has been coming to Helen House since 2017. Born in 2013, Lily-Mae was diagnosed with Rett Syndrome in 2015, which causes regular seizures. It took some time for Mum Leanne to come to Helen & Douglas House, but she is now glad she did as it gives her the chance to be Mum, rather than carer and to get support.
Meet Toby and his family
Toby is five-years-old and lives at home in Buckinghamshire with his mummy and daddy, Kim and Tim. He has a complex neurological condition called Dravet Syndrome, which means he experiences very frequent and severe seizures.
Sophie and Ed’s first baby, Martha, was born in a critical condition and she passed away in Sophie’s arms at 5-days-old on 26 May 2015. They were transferred to Helen & Douglas House that same evening where they were looked after as a family for a few peaceful days.
Imogen died at Helen & Douglas House on 23rd January 2017, aged just 2 years old, after bravely battling a brain tumour and never failing to smile as she endured chemotherapy, only for the cancer to return. ‘Without HDH support I am not sure we would have got through the first year on our own.’
Ollie’s and Ben’s story
Mike is the father of twin boys, Ben and Ollie. Both boys were born with a life-shortening condition and diagnosed age three and a half with MPS – Sanfilippo 111A. This is a metabolism disorder which delays development and causes significant neurological symptoms. Sadly Ben passed away in October 2012, shortly before his 10th birthday and Mike then lost Ollie very recently in May 2018, aged 15.