This is an upcoming research study examining the best way to measure breakthrough pain in children already taking regular pain medicine. Breakthrough pain is the discomfort experienced when the symptom is temporarily worse than the existing medication can deal with and needs rapid treatment with top-up medication. Interviews will take place with young people, and their parents / carers, leading to the development of a tool, which will then be reviewed by patients, parents and healthcare professionals. The work involves several other specialist centres and is funded by Great Ormond Street Hospital Charity, and will take part over an 18 month period (2022-2024)
