Research project from Together for Short Lives (TfSL) and the Association of Paediatric Palliative Medicine (APPM) for identifying ways to support and develop those undertaking or considering doctoral studies concerning children and young people with life-limiting and...
The aim of this research was to describe the nature and causes of reported patient safety incidents relating to care in the community for children dependent on long-term ventilation with the further aim of improving safety.
When a child is diagnosed with a life-threatening condition, one of the most challenging tasks facing health-care professionals is how to communicate this to the child, and to their parents or caregivers. This paper reviews the effect of communication on...
The use of long-term ventilation (LTV) in children is growing in the UK and worldwide. This reflects the improvement in technology to provide LTV, the growing number of indications in which it can be successfully delivered and the acceptability of LTV to families and...