With the growing number of children and young people with complex care needs or life-limiting conditions, alternative routes for nutrition have been established (such as gastrostomy feeding).
Understanding the child’s underlying condition, possible causes of pain and their preferred mode of communication are important to the delivery of holistic care. This article aims to explore this.
Children and young people can have a wide range of life limiting conditions and may sometimes live with such conditions for many years. This guideline recommends that end of life care be managed as a long term process that begins at the time of diagnosis of a life...
This paper examined the potential of a new classification framework, The Spectrum of Children’s Palliative Care Needs, to facilitate identification of children with palliative care needs for the purposes of minimum data set collection and population needs...
This article reports a systematic review of literature undertaken to identify characteristics and experiences of anticipatory mourning in caregivers of teenagers and young adults with life-limiting or life-threatening conditions. This review focused on six studies...
