Perinatal palliative medicine is an emerging subspecialty within paediatric palliative medicine, neonatal medicine, fetal medicine and obstetrics. This paper defines and describes one model for providing perinatal palliative care, drawing on the personal and...
Together for Short Lives-Asssociation for Paediatric Palliative Medicine [TfSL-APPM] research group was formed in recognition of the challenges in research with life limited children and their families and in the hope that by coming together – researchers and...
An advance care plan (ACP) is the record of a discussion between an individual (where possible), their professional care givers and those close to them about their future care. When performed well, the process provides all those involved with the opportunity to talk...
The aim of this survey was to investigate current off-label prescribing of fentanyl for breakthrough pain relief in paediatric palliative care and to ascertain any barriers to use.
This paper seeks to highlight from a UK perspective the current lack of a research evidence base in paediatric palliative care that has resulted in a paucity of available medicines with appropriate formulations (strength and dosage form) to provide symptom management...