Many families now perform specialist medical procedures at home. Families need appropriate training and support to do this. The aim of this study was to evaluate a library of videos, coproduced with parents and healthcare professionals, to support and educate families...
Addressing the current gap in quality research in paediatric palliative care requires a shared and collaborative response between the academic and paediatric palliative care sector. The aim is to provide a UK wide Collaborative Paediatric Palliative Care network that...
Difficult decisions are often faced in clinical settings, especially where children are being treated. Sadly, in some cases, differing opinions about care or treatment can result in conflict between families and the clinicians treating their children. These conflicts...
C-POS aims to develop, validate, and implement a person- and family-centred outcome measure that can be used by CYP and their families affected by LLLTC. The study will identify CYP, family, professional and commissioner priority concerns and outcomes in paediatric...
This is an upcoming research study examining the best way to measure breakthrough pain in children already taking regular pain medicine. Breakthrough pain is the discomfort experienced when the symptom is temporarily worse than the existing medication can deal with...
