For links to charities and support groups for particular conditions click here.
General hospice information
Children's Hospices UK
"Children's Hospices UK" (previously The Association of Children's Hospices) is the national voice for children's hospice services and the children and families they care for. We strive to ensure that the estimated 20,000 life-limited children in the UK, and their families, have access to the unique range of services children's hospices provide." http://www.childhospice.org.uk
Association for Children with a Life-Threatening or Terminal Conditiion
"ACT is the first and only organisation in the UK concerned with the needs of all children with life-shortening conditions and their families, regardless of the particular diseases involved. Helen House, along with other hospices for children, is a member of ACT. ACT, in consultation with the membership, publicly launched the Charter for Children with Life-Threatening Conditions and Their Families in June 1993." http://www.act4families.org.uk/
Hospice Information
"Hospice Information is a joint venture between St. Christopher's Hospice and Help the Hospices. It brings together the experience and established reputation for high quality of the Hospice Information Service at St. Christopher's and the national remit and innovative information developments of Help the Hospices. Together, we want to provide a world-class information service for health professionals and members of the public, on UK and international hospice and palliative care." http://www.hospiceinformation.info
Help the Hospices
"Help the Hospices is the national charity for the hospice movement, founded in 1984 by Anne, Duchess of Norfolk." http://www.helpthehospices.org.uk
Lifelites
This web-based resource provides information on the lifelites project, which aims to improve the quality of life for children with life-limiting illnesses, through the use of information technology. http://www.lifelites.org/
SpecialEffect
SpecialEffect is a charity dedicated to helping all young people with disabilities enjoy computer games. http://www.specialeffect.org.uk/
Other Children's Hospices:
Acorns
West Midlands http://www.acorns.org.uk
Bluebell Wood Children's Hospice
Doncaster http://www.bluebellwood.org
Butterwick
Stockton-on-Tees http://www.butterwick.org.uk
Children's Hospice Association Scotland
Rachel House, Kinross Robin House, Balloch http://www.chas.org.uk
CHASE
South East England http://www.chasecare.org.uk
Chestnut Tree House
Worthing, Sussex http://www.chestnut-tree-house.org.uk
Children's Hospice South West
South West England http://www.chsw.org.uk
Claire House
Merseyside http://www.claire-house.org.uk
Rainbow Trust Children's Charity
Rainbow House in Surrey and Rainbow Fernstone in Northumberland. http://www.rainbowtrust.org.uk
Rainbows
Loughborough http://www.rainbows.co.uk
Demelza House
South East England http://www.demelza.org.uk
Derian House
Preston, Lancashire http://www.derianhouse.org.uk
East Anglia's Children's Hospices
Quidenham (Norfolk), Milton (Cambs) and Ipswich (Suffolk) http://www.each.org.uk
Eden Valley Children's Hospice
Carlisle http://www.edenvalleyhospice.org.uk/
Ellenor Foundation
Kent http://www.ellenorfoundation.org
Francis House
Manchester http://www.francishouse.org.uk
Haven House Foundation
Woodford Green, Essex http://www.havenhouse.org.uk
Hope House Children's Hospices
Hope House in Oswestry and Ty Gobaith in Conwy. http://www.hopehouse.org.uk
Iain Rennie Hospice at Home
Hertfordshire http://www.irhh.org
Julia's House
Dorset http://www.julias-house.org
Keech Cottage
Luton http://www.pasque.org
Little Haven
South End, Essex http://www.seech.org.uk
Martin House
Wetherby, Leeds http://www.martinhouse.org.uk
Naomi House
Nr Winchester, Hampshire http://www.naomihouse.org.uk
Noah's Ark
North London http://www.noahsarkhospice.org.uk
Northern Ireland Children's Hospice
Horizon House is in Newtownabbey. http://www.nihospicecare.com
St Andrew's Children's Hospice Unit
Lincolnshire, Hull and East Riding http://www.standrewshospice.com
St Oswalds
Newcastle http://www.stoswaldsuk.org/
The Donna Louise Trust
Staffordshire and South Cheshire http://www.donnalouisetrust.org
The Shooting Star Children's Hospice
Hampton, Middlesex http://www.shootingstar.org.uk
Ty Hafan
Cardiff http://www.tyhafan.org
