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Family stories

Little baby holding green toy

Aliza-May’s story

Aliza-May was born in June 2017 with a rare syndrome called Edwards. For the first week of her life Aliza-May’s Mum Emma-May and Dad Ross lived in the special care baby unit where every test under the sun was done.

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Little boy with parents smiling at hospice

Max’s story

Max, from Swindon, has been coming to Helen & Douglas House since 2014. Max was born in 2007 and has mitochondrial disorder, a condition which means he requires 24-hour care and support.

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A man at the beach with his twin sons

Ollie’s and Ben’s story

Mike tells us about being a dad to twin boys, Ben and Ollie. Both boys were born with a life-shortening condition

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Little boy with his dad smiling at the hospice

Toby’s story

Toby lives at home in Buckinghamshire with his mummy and daddy, Kim and Tim. He has a complex neurological condition called Dravet ...

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Black and white image of little girl smiling

Imogen’s story

Imogen died at Helen & Douglas House on 23rd January 2017, aged just 2 years old, after bravely battling a brain tumour and never failing to smile as she endured chemotherapy, only for the cancer to return.

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Mum and dad with baby in cot at hospice

Martha’s story

Sophie and Ed’s first baby, Martha, was born in a critical condition and she passed away in Sophie’s arms at 5-days-old on 26 May 2015. 

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We need to raise £6 million each year to care for local terminally ill children at the hospice and at home.